Getting My Mojo Back

Good Day Everyone,

I hope you've all had a great start to 2016. I am pleased to say that I am finally starting to feel like myself again. In fact, I feel like I'm getting my mojo back :o).

The last couple of months of 2015 were very difficult. My arthritis flared up severely and there were days where I felt like I couldn't carry on living with the excruciating pain I was experiencing. In addition, both my scalp and body psoriasis were also flaring and I was suffering from more migraines than usual, all whilst living in what felt like a building site! The despair that I felt at the end of 2015 was reminiscent of the despair I felt back at the end of 2011, when I made the difficult decision to give up my career so that I could work on my health full time. I felt like I was living under a dark grey cloud surrounded by a thick fog - I couldn't see where I was going, there was no shining light in the distance, and I could feel myself heading into a downward spiral of depression. If you've read my previous blog post (read here), you'll know that I slowly but surely started to take positive steps to move forward during the last few days of 2015.

Juicing again :o)

Over the past few weeks I have continued to make good progress with small positive changes to my daily life. I am now in a place where I'm starting to feel happy about my life again. My health is starting to improve and whilst I am still struggling with my arthritic shoulder, I have seen small improvements. I feel like I now have a better understanding of what I need to do to help my shoulder get better and accepting that it is going to be a long slow battle is easing my frustration.

Having a fully functioning kitchen has been a huge contributor to me getting my mojo back. I always feel better when I have greater control over what I eat, as I know from experience that what I eat greatly affects my arthritis. Living in a caravan for six months with a restrictive kitchen meant that we were eating foods that didn't take long to cook as the cooker wasn't particularly powerful, and foods that were convenient to store as we had a very small refrigerator. Basically, we lived of a lot of processed carbs like pasta and bread. We were eating some fruit and vegetables, but it wasn't as much as we would typically eat, and there were a few too many treats. My hubby is a sugar junkie and would often snack on chocolates and biscuits, whilst I relapsed on my crisp addiction (although to be fair, I think I was comfort eating as I was unhappy with my whole living in a caravan situation). Whilst hubby would burn of the calories from his vice due to all the physical work he was doing, I on the other hand, developed a rather rounded midsection due to my sedentary lifestyle ;o). However, all that is now changing. We have a fully equipped kitchen and a dining table with chairs, which means that we actually have something to sit on, other than our bed, and that has made the world of difference.

 Below are some of the steps that I have taken over the past few weeks that have resulted in me getting my mojo back;

• Exercising daily: I have made a conscious effort to get back into the routine of exercising daily. Exercising really helps with my arthritic pain and joint stiffness which in turn helps my mobility. Some days I will go for a brisk 40min sea front walk, other days I'll hula hoop or do yoga based stretching exercises at home if I'm too tired for a walk or if it's raining (which it has been a lot!).
• Baths: One of the side effects of suffering from chronic pain is insomnia so I am trying really hard to take regular bath soaks in the evenings to help me sleep better and help with my joint pain.
• Bedtime: To help with my insomnia, I am trying to go to bed at the same time every night and get up at the same time every morning, even on weekends, so that I can condition my body and mind into a sleep routine.
• Food: Now that we have a functioning kitchen, I am cooking from scratch and we are eating healthy, nutritious food again which makes me incredibly happy, oh and there are no crisps in the house! Breakfast toast is now replaced with smoothie bowls and we juice most days so I get a good chunk of anti-inflammatory ginger into my overly inflamed body.
• Cooking in bulk: Because I never know how bad my body is going to be from one day to the next, I have started to cook in bulk. I will often cook enough food to last us for two days and if it's freezable I will make enough so that a couple of batches can go in the freezer. This way there is healthy home cooked food in the fridge / freezer so that we don't resort to ready meals / takeaways. Plus, it means I don't have to cook every single day, meaning I can use that energy to write blog posts like this one :o).
• Medication application: To deal with my flaring scalp psoriasis I have resorted back to a routine of applying my scalp medication daily (read more here). This means having to wash my hair every single day which is an incredibly exhausting task when you suffer from chronic fatigue and exhaustion, but I am seeing such great improvements that it's keeping me motivated to continue. Hopefully, soon my hair will no longer look like someone has emptied a snow globe on it and I can temper the medication application down to just a couple of times a week. I am also doing the same with my body psoriasis.
• Drinking more: To help with my migraines I am making a conscious effort to drink more water. Aside from food / scent triggers, I know that being dehydrated can cause me to experience more migraines and lets just say that having to use a caravan toilet for six months wasn't the greatest incentive to drink more!
• Silence: This is slightly more on the meditative side but I am consciously taking time out of my day to simply be in silence. I sit without the radio or laptop on (we have no television and you can find out why here) and just listen. It is incredibly calming. Being surrounded by trees and public gardens mean we get a lot of birds around our house, especially at the back and sometimes I just stand and listen to / watch them. We also have squirrels at the back of our house and they are always fun to watch.
• Acceptance: I am actively accepting the things that I cannot change and learning to let go of the negative emotions they cause me to feel. One half of our house still looks like a building site and walking through it used to really upset me. The other half, whilst it's progressed significantly, it still isn't finished and not having a single room that is finished really grated on me, but no more. I have accepted that this house renovation is taking a lot longer than we ever anticipated and being upset about it doesn't actually change the situation. There's no point in wasting valuable energy in being upset. I just have to ride it out whilst appreciating all the things that are working, like the kitchen and having a regular toilet and bath. I am also accepting that getting my health back on track is going to be a long journey, but at least I am moving in the right direction now. 

Over the years that I've lived with Arthur (aka arthritis), I've been forced to learn (and accept) that things are just going to go at a much, much slower pace for me, compared to others. Having a mind that is fully functional, but a body that is not, causes a great deal of internal conflict and frustration. I have so many ideas of blog posts that I want to write, content that I'd like to create for my YouTube channel and photographs that I want to take, but alas I barely have enough energy to shower and cook most days. My life now is so different to before Arthur invaded my body. I often reminisce of when I used to have a career that led me to travel the world (well Europe and the US), work crazy hours and always be on the go socially. My world has shrunk so much, as has my identity, but nonetheless, I have learnt to treasure the days when I can cook and shower for I have experienced days when I haven't even been able to do that. Having an attitude of gratitude (and acceptance) is definitely key in learning to be happy whilst being chronically ill.


Love Sheen xxx

Psoriatic Arthritis: Second Time Acupuncture, Cupping & Moxibustion

Good Day Everyone,

Last Friday I went for my second session with my Japanese therapist for some more complementary medicine/therapies. I could not believe the difference the first session had made to my left shoulder. A week later and that shoulder was still feeling great. There was barely any tension or tightness. I've also found that I sleep really well on a Friday night after my sessions.

In last week's session the therapist started by asking me how I was feeling, specifically with regards to my problematic left shoulder. I informed her of the huge, positive, difference the first session had made to my left shoulder and explained that I was struggling with the pain in my right shoulder and collar bone joint. Also the arthritis in my right wrist and thumb was particularly active.

Acupuncture needle in my foot

She started this second session, very much like the first one, with me lying on the massage bed facing up and her examining my stomach and then poking it in several places with an acupuncture needle. She then examined the rest of my body in detail and focussed a lot on my spine. After this I spent the next hour or so face down as she did acupuncture on various parts of my body including my head, neck, shoulders, and ankles. She did focus more on my right shoulder given that that was my problematic area currently. I apologies in advance for the quality of the photos as they were taking using a phone rather than my camera.

Acupuncture needle in my head

Like the previous week, she used Moxa patches on my ankles.  In the photo below you can see the Moxa patch on my ankle burning away. As the stub burns further down, the metal part of the base/patch does get quite hot so if the therapist hasn't taken it off by that stage then I'll usually say 'hot' in Japanese and she'll immediately remove it. She also uses a 'cigarette' version of the Moxa patch and sort of pushes the warm ash into certain places on my back after she's pierced it with an acupuncture needle.

You can listen to my experience of my second session in the video below as well as how it left me feeling afterwards and again three days post-session. In the video I also talk about my first ever experience of the wet cupping (also known as blood letting) that the therapist did on the back of my neck.

As she wrapped up the session the therapist stuck these acupuncture plasters on various parts of my body. As you can see from the photo below, the plaster has a raised nodule in the centre and inside it is a very fine, short acupuncture needle.

Single needle acupuncture plaster

I removed these acupuncture plasters a few days later and I tried to capture a photo of the needle at the center just to show you what it looks like. You'll have to excuse all the fluff that's on the sticky part of the plaster in the photo below.

In case you are wondering, my sessions typically last around 80-90mins. The first one cost 8,950 Yen and all subsequent sessions cost 6,700 Yen, which is actually cheaper than a massage.

I'll be honest, I am struggling to fully understand how exactly these therapies are working and you may think that there is an element of the placebo effect, but I am actually feeling a reduction in not only the tightness in my muscles and joints, but also a reduction in my pain, and there's no mistaking when I'm in pain. The way I look at it is that at least there are no real side effects to these therapies unlike modern pharmaceutical drugs and even if I don't understand how they are working, I will continue to explore these therapies for as long as they are having a beneficial effect. I only wish I'd started to explore them a few years earlier, but hey, you live and learn ;o)

Have you ever tried acupuncture or any other complementary therapies? What was your experience?

Love Sheen xxx

Psoriatic Arthritis: First Time Acupuncture, Cupping & Moxibustion

Good Day Everyone,

If you've read my previous post then you'll know that I've had a very tough and painful few weeks with my recent arthritic flare. I cannot put into words the fatigue and exhaustion I have felt lately, not to mention the excruciating pain, sleep deprivation and breathing difficulties. Arthritis is sooo much more than a few aches and pains!

In my desperation to manage this flare I dramatically upped my pain medication...it did nothing! I went for three massages in one week in the hope that they would alleviate my spinal and shoulder pain but again this was unsuccessful.

Acupuncture needles in my hands

So I finally bit the bullet and decided that nothing could be worse than the pain Arthur (aka arthritis) has been causing me, not even the pain (or fear rather) of needles and started to explore complementary medicine, namely acupuncture and cupping.

In this video, I talk about my first ever experience of not only acupuncture and cupping but also something call moxibustion. In a bid to save my arthritic fingers from unnecessary typing I wont repeat what I discuss in the video but I'll leave a few links down below to where you can find more information about these three therapies, in case you're interested in them.

Oh and by the way, in case you were wondering... I cannot believe HOW MUCH BETTER I feel after just one session and I'm now KICKING myself for letting my phobia of needles and pain get in the way of trying these therapies sooner! But at least I seem to be turning a corner and finally feeling human again :o).

Love Sheen xxx

More about acupuncture here
More about cupping here
More about moxibustion here
Watch moxibustion in action here